Myths and Discrimination against Persons with Albinism.

On May 30, 2025, Hitches and Voices turned its spotlight on a community that is often overlooked yet faces deep-rooted prejudice — persons with albinism (PWAs). This edition featured Collins Omokaro, Secretary of the Albinism Association of Nigeria, who spoke candidly about the challenges faced by PWAs, ranging from serious health concerns to damaging societal attitudes. His words painted a clear and sobering picture of what it means to live with albinism in a society that often misunderstands, excludes, or even fears those who look different.

Omokaro began by explaining that albinism is a genetic condition caused by little or no melanin production, which affects the skin, eyes, and overall health. Because melanin plays a critical role in protecting the skin from the harmful effects of the sun, persons with albinism are highly vulnerable to skin damage and skin cancer. The condition also affects the eyes, often leading to low vision and sensitivity to light. These are not mild inconveniences — they are significant health challenges that, if left unaddressed, can lead to life-threatening consequences. For this reason, albinism is recognized under the disability category, making it clear that PWAs are entitled to specific protections and support under disability laws. However, despite this recognition on paper, the reality is that many PWAs still struggle to access even the most basic healthcare and protective resources.

Yet, as Omokaro emphasized, the biggest burden faced by PWAs is not always physical — it is social. From a young age, children with albinism are often met with cruelty rather than care. Bullying in schools, exclusion from peer groups, and hurtful name-calling are common experiences. These early encounters with discrimination can lead to low self-esteem and a lack of confidence that lasts well into adulthood. What is perhaps even more troubling is the persistence of harmful superstitions in certain communities. In some areas, people with albinism are seen as mystical beings or associated with spiritual powers — beliefs that have led not just to isolation, but in some extreme cases, to violence, abduction, and ritual-related killings.

These myths are not just ignorant; they are dangerous. They create an atmosphere of fear and mistrust, where PWAs are viewed not as individuals with hopes, dreams, and capabilities, but as symbols or objects of cultural misunderstanding. As Omokaro pointed out, these superstitions rob people of their safety, their dignity, and their right to live freely. They also prevent communities from seeing the full humanity and potential of their members with albinism. This form of exclusion is not only morally wrong, but it holds back social progress by denying people the opportunity to contribute meaningfully to society.

Omokaro called for a two-fold response — government action and public education. On a policy level, he stressed the importance of providing essential resources that are not luxuries, but necessities for survival. These include items like sunscreen to protect sensitive skin, hats and umbrellas to shield from harmful sunlight, and regular dermatological and eye care. Without access to these basic tools, many PWAs are left vulnerable to preventable illnesses. He also emphasized the need for disability laws to be enforced in practice, not just written in legislation. This includes ensuring that PWAs have access to education, employment opportunities, and healthcare services tailored to their specific needs.

Equally important is the role of public awareness in changing harmful mindsets. Omokaro argued that sustained education campaigns are crucial in breaking down the misconceptions that surround albinism. These campaigns need to reach into schools, religious institutions, community centers, and the media — spaces where harmful narratives are often reinforced but can also be challenged. By replacing ignorance with knowledge, and stigma with empathy, society can begin to shift toward greater inclusion. He made it clear that such efforts cannot be one-off events; they must be continuous, intentional, and far-reaching if they are to truly change public perception.

For Omokaro, protecting persons with albinism is not simply a matter of health or law — it is a test of our collective humanity. It is about how we treat those who are most vulnerable, and whether we are willing to stand up against prejudice, even when it is deeply rooted in tradition. He reminded listeners that inclusion is not an act of kindness or charity — it is a matter of justice and equality. Every person, he said, has a role to play in dismantling the harmful myths that continue to surround albinism. Whether by speaking out against discrimination, supporting inclusive policies, or simply learning the truth about what albinism is and is not, each of us can contribute to building a safer and more accepting society.

Ultimately, Omokaro’s message was one of hope — that change is possible, but only if we are willing to confront the truths we have long ignored. Persons with albinism are not defined by their condition. They are artists, scholars, leaders, workers, and community members with dreams and talents like anyone else. What they need is not pity, but support. Not silence, but advocacy. Not fear, but understanding. And above all, they need to be seen — not as symbols of superstition, but as human beings deserving of dignity, protection, and opportunity.

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